Friday, June 04, 2010

Breaking the Silence...

It's been quite awhile since I've put up a post mainly because I haven't been feeling well and consider it something 'extra' that I just haven't had time for. I can't justify spending time on the computer when the dishes aren't washed, the house is a mess, and I haven't prepared anything for the kid's pre-school lessons. Not that any of those things are taken care of tonight, but I thought I should put up an update about my (Emily's) health and ask for some prayer.
My Crohn's disease flares up pretty much every spring, and I thought that things were doing alright this time around although my sed rate level was up to 40 the last time I had it checked (sed rate tells you how much inflammation you have and most people are in the single digits). My doctor wanted to do a colonoscopy just to see how things looked, which I had done last week, and apparently things aren't looking so good. He said there's a 70% chance that I will have to have surgery to remove an area of my intestines that is strictured (significantly narrowed, although not completely blocked yet). He said that I can try some more potent drugs to reduce the inflammation or opt for elective surgery to prevent it from becoming emergency surgery. In my opinion, neither one is a good option. When 'death' is listed as a rare, but possible side effect, that doesn't bode too well for a drug in my opinion. I had already started doing some research on my own before the colonoscopy and came across a book called 'The IBD Remission Diet' which is an all-natural elemental (liquid) diet that seems to be pretty effective at causing remission in people with IBD. So, faced with much dire options, we ordered all that I will need to try this diet for 6 weeks to see if I can get things calmed down in a safe, natural way. However, I don't think my doctor is going to be too keen on this (I've tried to get a hold of him, but haven't actually connected yet), so this is where I could use some prayer... for a good conversation with my doctor and wisdom to know if I should look for a new doctor, for some way to cover the exorbitant cost (the only way to get insurance to cover any of it is with a 'Letter of Medical Necessity' from my doctor, which I am pretty convinced isn't going to happen. Even if he does send a letter, there's no guarantee it will be covered at all), for me to be able to find a way to rest while on the diet as my body will need to be able to focus on healing itself, and last, but certainly not least, that it will make the inflammation go down and open up the strictured area so that I will not have to resort to things that could be more harmful for my body. Also, that there would not be too much scar tissue present since that can not be reversed like inflammation and if there is too much, I would pretty much have to have surgery.
Thank you for your prayers! I will try to update once I have been on the diet for a little while to let you all know how it's working.

1 comment:

Beth, Dylan, Brandon, Summer Joy and Evelyn too! said...

Em,
i'll be praying for sure...please keep me posted and let me know if i can do anything to help. i love you!! was so good to see you all on memorial day. we have to do it again soon!!
beth